September 6, 2019 – (WSMV) Often times being parent can have it’s own sets of challenges. Some of the people who face those challenges are those who have children with down syndrome. This weekend they’re getting time to come together with the help of country star Luke Bryan in partnership with TC Restaurant Group.
Some 300 mothers who are apart of the the Down Syndrome Diagnose Network are having moms night at Luke Bryan’s 32 Bridge bar in downtown. Luke has a close family connection to the condition. Luke Bryan’s niece, Sadie Brett Boyer had Down syndrome. Boyer died at just 7 months old due to congenital heart disease. There is a wing mural inside of Luke’s bar to represent her life and the Brett Boyer Foundation.
“Someone told me that I need to familiarize myself with the word stubborn because the extra chromosome is just full of extra stubborn.”
Mount Juliet mom Stacey Russell’s two and half-year old son San also has Down syndrome and was diagnosed with it at birth. “Someone told me that I need to familiarize myself with the word stubborn because the extra chromosome is just full of extra stubborn”, said Russell.
Stacey is taking part in the down syndrome diagnose retreat with 300 other moms this weekend. It’s a way for them to connect and support each other. Russell said she was overjoyed when she heard the TC restaurant Group restaurant was donating their space. “We are going to give you the whole rooftop and the sushi bar a live band, our own signature drink. All this stuff and it usually cost $10,000 and they are going to give it to us for free”, said Russell.
Adriana Orsini, Assistant Director of Marketing for the TC Restaurant Group, stated as soon as the group heard about the mom’s retreat from the Brett Boyer Foundation, they knew they wanted to be a part of it.
“I think these moms go through a lot in their daily lives and they’re down here for a conference. We just really want to make them feel special in the city of Nashville, so that they can remember their special time in Nashville.”
The moms wanted to say thank you to the TC Restaurant Group, & the Brett Boyer Foundation by holding a fundraiser. They raised more than $2,500.
